Today started at just after 6am for both of us. I knew that a lot of things were happening this morning so I didn't want to miss it. I arrived at 7:30am and the plastic surgeon had already been there and removed the dressings on Rob's arm and leg. They were very happy with the skin graft on his arm and said that it adhered 100%! The skin they took went all the way to the bones and tendons so there is still a lot of healing that needs to happen. Right now it looks like his wrist is skin and bones and the skin is very purple. Rob said it was hard to see his wrist looking like that. Skin is an amazing organ and through time the skin with grow back. That spot will always be more sensitive but eventually it will look almost normal. His leg is looking good and since it is superficial they just put a special cover on it and it will heal like a normal sore.
About 8am Dr Nason came by and one of the first thing he commented on was how much the swelling in Rob's face had gone down over the weekend. He said the drainage tubes could be removed and did it himself right away. One of them was stuck so he has to get the plastic surgeon to come and have a look but they were able to get it out. So 2 less tubes today!! He also had half of the staples removed from him neck and they will remove the rest tomorrow.
After all of that Rob was very tired so after spending the morning with him I left to go see my sister (before she flew home) and Isaac. While it was quiet for Rob he had a nap! Rob's mom, Marilyn, spent the afternoon with him and was there with Occupational Therapy came and made a splint for Rob's arm. They do not want him to move his arm/hand until the skin graft has healed so they splint it to make it immobile.
They also switched Rob's feeding today. Up to this point he has been given nourishment through his feeding tube all day but now they will feed him larger amount but only at meal times (called Bolus feeds). This helps his body to get used to eating meals and will eventually help when he starts eating food by mouth.
My sister had to go home today. It was great to have extra help with Isaac especially on days like today where I could just leave and know someone was there to care for him. It was also great to give Rob's family a break with helping me with Isaac. I look forward to my next visitor who arrives on Thursday!
I have had a few people ask about visiting Rob. He is at the point where he is ok with a few short visits. Because he still can't talk it is best if people stop by when I am there to help him with communication. So if you want to come and see Rob give me a call and we can work it out!
We are exhausted and I am really looking forward to sleep tonight. We continue to take this journey day by day, taking the time to enjoy the good things and trusting in a God who cares deeply for us.
Love Karen
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