Isaac always talks about being together as a family. Whenever he finds out the 3 of us get to be together or go somewhere together he usually yells "Hooray!". That is how I am feeling right now! It is so good to be back together and have Rob back at home with us.
Over the last few days we have been getting into a new routine with homecare coming to change Rob's dressings, doing the tube feeds on our own, Rob sleeping lots, hanging out as a family and doing some outings together. I have also started back at work and it is going well. While Rob was in hospital I had a hard time even thinking about being at work and not being with Rob or Isaac. Rob is feeling confident being at home alone and this morning when Isaac and I left Rob happily waved and was looking forward to some quiet time...something he didn't get any of in the hospital.
This weekend we were able to go out a few places together. Rob gets tired quickly but we are figuring out what is enjoyable for him so he can get out here and there. One Friday night Rob came and cheered me on at volleyball....well he wasn't exactly cheering loudly but I loved having him there. After volleyball we stopped by church as youth group was ending. We are youth leaders and basically all of a sudden stopped going because of Rob's diagnosis. So we were able to stop by and say hello to the youth who we miss a lot. When Rob walked in the room they all cheered and clapped. They even laid hands on him and prayed for him. It is moments like these where you realize the positives far outweigh feeling a little tired. After that we met my team at Dairy Queen where Rob was finally able to have some ice cream!
On Sunday Rob decided he was up for going to church! It was very encouraging for him and everyone was very happy to see him. Our church has been an amazing support to us and it was good to be there and show them evidence of their prayers. I can't imagine not being surrounded by a community of believers like we have. We have both been brought to tears by the generosity of our church and it's members as well as family and friends who don't go to our church or even live in Manitoba. I wish I had the energy to thank each one who has helped us in some way and those who will continue to help on our journey. So know that your words, prayers, gifts, financial support, food and love are so greatly appreciated and cherished. It is amazing how we can go through a tough time like this and still smile each day knowing God loves us and has given us a community of support. Thank you from the bottom of our hearts. Praise be to God, the giver of all good things!
Over the next week Rob will slowly introduce more foods into his diet to take orally. He will be on a pureed diet for a while but we have mastered this because this is what he was on before his surgery. It is amazing what you can puree and it actually tastes really good! Next Monday at the follow up with Dr Nason we will also meet with Speech Language Pathology and maybe they will get rid of the tube feed if Rob is taking enough by mouth. This Friday Rob will also be starting physio on his arm. When we left the hospital he was given some exercises to do to strengthen the arm where the skin graft is but as he gets stronger he needs more exercises.
We continue our journey day by day trusting God.
Love Karen
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